The Zebra and the Bear

The human story behind the science that may save the lives of generations of children with rare genetic disorders

Directed by Patrick O'Connor

The Zebra and the Bear is an intimate and impactful documentary film about how a mother’s fierce determination to save her daughter from a fatal, ultra-rare genetic disease called Multiple Sulfatase Deficiency (MSD) leads her on a journey to raise millions of dollars and drive the development of a pioneering gene-therapy treatment. Filmed over seven years, The Zebra and the Bear reveals the human story behind the science that may eventually save the lives of generations of children born with rare genetic disorders.